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According to data from NHS Blood and Transplant (NHSBT), fewer than five patients across Wales and England are currently being supported by a Berlin heart, a device designed to sustain patients for several months while they await a transplant. This device is particularly crucial for those needing extended support prior to receiving an organ.
Within the UK, only 2% of deceased organ donors are under the age of 18, highlighting a significant gap in the donor pool for younger patients. This statistic motivated the family of a child named Macs to advocate for greater awareness about organ donation. Dylan, a family member, emphasized the importance of this cause, stating, “It’s not a nice subject to be discussing, but the more people who donate organs, they can help children like Macs lead a full and happy life.”
In the UK, there are just two specialist hospitals equipped to fit the Berlin heart: Great Ormond Street Hospital in London and the Great North Children’s Hospital in Newcastle. These centers provide highly specialised care for patients like Macs who require such advanced medical interventions.
The NHS Wales Joint Commissioning Committee (NWJCC) acknowledged the emotional difficulty faced by Macs’ family during this challenging time. Although funding exists for patients needing highly specialised services, the committee explained that access is determined across the UK based on clinical assessment and available capacity. They added, “We understand that the specialist teams involved in Macs’ case remain focused on supporting him to ensure he receives the care and treatment he needs.
Read the full article from The BBC here: Read More
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